How My 2 Year Old Broke My Heart

It is known that Vanessa cannot talk. Even at 2 and a half years old, her vocabulary consists of about 5 words.

If you are lucky.

Every single day I get frustrated with her because she wants something, I don’t know what she is saying, she cries and whines and yells at me, I kind of snap back, she gets pissed more.

Rinse.

Repeat.

Daily.

Since she has gotten a new speech therapist because her old one went on maternity leave, her new therapist is really pushing her to just do letter sounds.

So, whenever she is in a good mood (which is not often), I try to squeeze some letter sounds out of her too. Along with trying to get her to say a few words. Sometimes we win. Sometimes we loose.

Mostly Loose. But Whatever.

A few weeks ago, I was laying in my bed with Vanessa and I was having her do her letter sounds. I would do a sound, she would repeat, and so on. Then I switched to animal sounds. She will only do a few such as cat (ow), dog (more of a huh huh for woof woof), cow (oo), bird (wee wee), duck (ack ack), and just within the last few days owl (oo oo). If you have a child with apraxia of speech, you know this is a BIG DEAL.

So then I decided to switch to some basic words. I don’t recall exactly what I was trying to get her to say but I do remember that I asked her to say something and she broke out crying. I asked her “Vanessa, what is wrong?” She gave me some baby mumbo jumbo. I told her “Vanessa, mommy does not know what you are saying. You need to use your words.” She gave me more mumbo jumbo like she was yelling at me and continued to cry. So I then said, “Vanessa, are you sad?” She shook her head no. “Vanessa are you mad?” She shook her head yes. I asked her “why?” More mumbo Jumbo.

Then I said, “Vanessa are you mad because you can’t talk to mommy and mommy doesn’t understand what you are saying?”

Vanessa looked at me with those big blue eyes full of crocodile tears, shook her head yes while saying “uh huh” and proceeded to cry HARD sobs.

All I could say was “Oh Baby!” and hug her and cry big crocodile tears of my own into her blonde hair while my heart shattered into a gazillion pieces.

I had no words for her because I know she is frustrated. I see it every.single.day.  But how do I comfort her. All I can do is hug her and tell her it will be ok. But how does she know it will be ok? All she knows is mom cant understand. WHY CANT MOM UNDERSTAND?

My sweet girl. I cannot wait for the day that you are talking my ear off. Hopefully it is sooner rather than later.

App Review: SpeechBox App for iOS devices iPad & iPhone #SpeechBox

SpeechBox-Logo2501Since Vanessa has been diagnosed with Apraxia, I have been doing whatever I could to find things that would be useful or beneficial to her. I was told by the Pediatric Neurologist that saw her plus all her therapists, that it would be good for her to get her an iPad or other tablet to help her learn to communicate or help her communicate. They had also given me a list of apps to use for her since she is so interested in my iPad (and can probably work it better than me).

 

Lots of research has been going on for me. Trying to find causes, reasons, anything. I happened to stumble across this app. I was happily shocked to see that this app was created by a father who has a son that was diagnosed with Apraxia at 2.5 years old. His son could only make a couple small letter sounds (much like Vanessa). So, in the anxiousness of wanting to help his son, he created this app. It is available on the iPad and NOW on the iPhone.

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Sad Heart

untitledI saw this graphic today on pinterest. And it made my heart sad because that is exactly what my baby girl is going through. I couldn’t imagine not being able to talk.

When I try to explain what is wrong with Vanessa, people tend to shrug it off and say, Oh she is just being stubborn or my kid didn’t talk until such and such age. The thing is, is Vanessa TRYS really hard to talk. You can tell she want’s too. Just nothing comes out but grunts. Its so sad to me.

I feel like I did something wrong. Like I failed her some how. Could I have prevented this? What caused this?

So many questions & no answers. Its no fun to have all these questions running through my head.

I know she will be ok. But getting there is the hard part. And its stressful to momma!

The Results are In!

I got a phone call on tuesday from the clinic in Marshfield that they had a cancellation and that I could bring Vanessa in Wednesday morning at 8am for her autism evaluation if I was available.

Heck Yes! We would be there.

After I hung up the phone, my heart began to race. It was here. Finally. I finally get to find out what is wrong with my daughter. Find out why she won’t talk.

But then I got to thinking.

Do I really want to hear the results. What if she IS autistic? What am I going to have to do? What if she can’t be helped? What if they tell me she won’t have a normal life? Do I really want these results? What if I can’t help her? What if I am not a good enough mom for this?

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The Signs Are There

I finished Vanessa’s questionnaires for her Autism Evaluation.

I am not going to lie. Filling those out were rough. They tore my heart up. I mean I KNOW all the things she cannot do that she SHOULD be doing, but seeing it on paper is a whole other story.

Its like its out there. Its permanently documented. Its in your face.

Its REAL!

Real is scary.

So, now that those are complete and will be on their way to the specialist tomorrow, I have started documenting all the signs that I can find this way when I am in the moment, I can have them available and not draw a blank.

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Happy 2nd Birthday Vanessa (including Product Reviews/Giveaway)

Today, Someone turned 2.

Vanessa

Vanessa just DAYS old.

This little peanut, just celebrated a big day. She has come such a LONG way since her 1st Birthday!

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Therapy: Day 2

I dont know why I was so upset or worried about with Vanessa doing speech therapy. Like I mentioned before, I think it was just the word “therapy”.

Her therapist is AWESOME. I love her. She’s nice and funny and totally “gets” kids. And best of all, Vanessa interacts with her so easily.

Since the first time we had a therapy session with her, Vanessa can sign:

Milk
More
Eat
Please
Thank You
Daddy
Me
and sometimes she will sign Mommy

Apparently in the 10+ years that her therapist has been doing this, its the first time she has seen a child Vanessa’s age catch on that fast. She was thoroughly impressed! She didnt even know what to work on with Vanessa today.

Our new goals for next time is for Vanessa to get more thorough. As in give her choices of something and make her sign which choice she wants. For example if she wants a sippy give her an option for juice or milk or milk and water and have her sign which one she wants.

I am very proud of Vanessa. This was a lot easier than what we thought. She still doesnt peep any words but she has been babbling more than before which is a good thing.

Life would be so much easier if she would just TALK though.

In time I suppose.

Therapy; Day 1

I have to say, I have been so nervous and upset over this whole therapy thing. For some reason it has just bugged the crap out of me. I am not sure why. I think it’s just the word “therapy”.

I think most people, when they hear the word ‘therapy’, they just assume instantly that something is wrong. That is my instant thought too. When her doctor told us that we needed to put Vanessa in speech therapy, I instantly thought, ‘What is wrong with my child that she needs therapy’.

I am starting to loosen up at this assumption though. I am starting to realize, that just because Vanessa needs therapy, does not mean that something is terribly wrong with my daughter. Especially after her first therapy session today. I feel MUCH better about this whole situation. And I already LOVE her therapist.

When her therapist first came in, Vanessa was very resistant towards her. She did NOT like the therapist talking to her at ALL. She would grunt and whine anytime the therapist tried talking to her. She slowly worked her way into getting Vanessa to trust her & within 15-20 minutes, she had Vanessa taking mega blocks out of her hand and signing ‘More’. She was resistant towards her therapist touching her and showing her how to do the sign, but she was still signing it none the less. At the end of her session, she was practically climbing into the therapists lap.

We got a small packet of basic signs to go over. Until her next session we are to choose 3-5 signs that we really want Vanessa to use right away. We were told to try working 20 minutes a day 10 in the morning, 10 at night, on these signs and to work up to her having to do the sign in order to get what she wants. Its going to be hard to NOT cave in because she gets so upset and starts screaming. At those points my patience is going to be tested to the MAX.

On the session review sheet that her therapist gave us at the end of the session, she wrote “Vanessa is VERY smart”. I am thankful for that. It makes me feel like she is going to be OK and she WILL get this and she WILL get through.

After her session, I gave Vanessa a peanut butter & jelly for lunch. I cut it into small chunks and gave her one chunk. When she wanted another, she pointed to the counter and was grunting. I looked at her an said “Do you want more?” while doing the sign, and she signed “more” back to me. She did it a couple times. I was so proud.

Just now she was eating a graham cracker and wanted more, she was fighting me and would not sign more when she wanted more.

I can see this is going to be a rough road, but we WILL get through this.

We have too!

Milk Madness

Vanessa started whole milk yesterday. Not sure if her being extra crabby is a result.

But I know I’m not liking it.

I started out breast feeding. I couldn’t handle her demand. It was wearing me down and I thought I wasn’t making enough because every time I turned around, she wanted to nurse. I couldn’t do anything. I missed out on A family photo with Larry’s family because I was in the house nursing. It was frustrating.

I am a person with zero patience so it was upsetting me that I never got to remove myself from the couch.

I made the decision to switch her to formula. Things were great. She was happier and I was happier. Then she got unhappy. Her formula made her super gassy & uncomfortable. Her pediatrician put her on soy formula at 3 months old. That backed her up instantly. We have been dealing with constipation since and she is 19 months old. The doctor said she must have a cows milk protein allergy. Next step was Nutramigin baby formula. She was better on it but it didn’t clear her constipation.

At 12 months, instead of putting her on milk he put her on Pediasure. She seemed to be ok with that. Still constipated though.

Well her new doctor wants her to try whole milk now. I am hoping that she really doesn’t have a milk allergy. I believe I am mildly lactose intolerant. Milk makes my tummy upset but I still drink it anyway.

So today is day 2 and she has been irritable. I don’t know if it’s directly related to the milk because she is always whiney and grouchy but I’m hoping she does ok with this.

evaluation results (pt 2)

On Wednesday we spoke with Vanessa’s therapist about the results of her speech evaluation.

I was nervous going into it. Its always hard to hear results of something major like this. It doesn’t help that I am the type of person that always expects the worst of things.

I was still scared of her saying, ‘Oops we made a mistake, she is autistic.’ I am thankful that was not the case, because honestly, I wouldn’t be able to handle it. I know I say that now & then how I would handle it in the future are two different things, but I just don’t feel like I could handle something like that right now. I have TOO much on my plate and adding that would make me fall over.

The results stated that Vanessa is 33% delayed in language comprehension and 50% delayed in language expression. Meaning she understands language like a 12 month old and expresses language of a 9 month old.

We made a 6 month goal chart. Vanessa by now SHOULD be saying about 50 words. She cant even say one! :( Every once in awhile I feel like she says a word, but at the same time, I think I am hearing things. So in 6 months, we want her to be able to vocally say 10 words, be able to imitate 3-5 animal sounds, and point to body parts on a doll. I guess identifying body parts on a doll is harder than on yourself. *shrug* I dont know.

They are going to teach her basic sign language for like eat, milk, play, etc. so that it will give her a way to communicate with us so that she will not be frustrated and we wont be frustrated until she is able to speak.

I feel so terrible because she was doing normal baby talk before we moved. She was able to say Mama, Dada, & Baba. Then we moved, and she stopped. I traumatized her. :( It makes me feel like a bad mama. Although the day we had Santa pictures taken, when we came home, Branden had her saying Branden. Thankfully we got it recorded because she hasnt peeped it since!

Here’s hoping this works. This is a different path than our oldest daughter so I was freaking when she wasn’t talking at all. I am thankful that so far it’s minor and fixable. I just hope she engages with the therapist and focuses instead of being normal crabby Vanessa.